Well, in a similar sense, the same sort of thing happened with me. My fortune changed when a PA (Physician's Assistant) recognized that my t-cell (white blood cell) count was off the charts. Contrary to most people with auto immune diseases, mine seemed to go the other direction. He had been a medic in Viet Nam and recognized that I had similar symptoms to troops in the jungles. There was an epidemic of Eppstein-Barr during the Viet Nam War, which led to many of our men coming home sick once they had been discharged.
That was the key to opening the door to my wellness journey.

I too, have had to do a great deal of research on my own, and steered many of the clinicians I was working with to answers.

The whole COVID element is just ridiculous too. Thanks to the 'vid, no one seems to die from heart disease, emphysema or the flu. It's always the 'vid now. /end sarcasm

As someone who has had it twice now though? It's no fun.