Ripples of another Me

in Self Improvement2 years ago

A couple minutes before a meeting started, I was scrolling through my Lightroom folder on my phone of photos I have taken over the last few years. There are many, but what I noticed is that since I had the stroke in the summer, I have been far less active and the series of shots I have taken have been less. I think that this is aligned with my personal motivation, my level of general energy and patience since it happened.

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It is very much like a lightbulb filament blew and a room in my brain went dark. It is quite off-putting to think about, but I do so regularly as I am constantly reminded of it at pretty much every waking moment and many whilst sleeping.

One of the things that I have noticed is that I have become more reactive, rather than proactive, where even in conversations I am looking for cues instead of leading the discussion. This isn't necessarily a bad thing, but I believe that it demonstrates the struggle my brain is having to create imagery automatically to present, so it is waiting for an external source to create.

Without that external source, the light just doesn't seem to want to fire up, regardless how many times I flick the switch like an obsessive compulsive. Yet, even though I recognize the bulb is burned, there is no way for me to replace it and because of the structure of the rooms involved, there is little chance to shine a light into the nooks and crannies to see what I have lost in there.

It is a random checkerboard of light and dark, where the darkness is an impenetrable void, blockholes of experience that has been lost in such a way, that it is like a dream if it was ever known at all. I think that this is where at least part of that sense of disconnection from myself comes from, as even though I "know" certain things, the way I know them and my inability to use them are no longer tethered together. It is like feeling like being able to dance a tango, whilst simultaneously knowing you are a quadriplegic without even a wheelchair. Mentally of course in my case, not physically.

But perhaps the weirdest part is that it doesn't affect the brain or skills uniformly, so in some areas it is like there is no difference at all, but others (like my ability to build visual representations mentally) is so heavily affected that from perhaps the casual observer, they would feel I never had the skill to begin with.

It reminds me of my grandad, who I first remember from when he was already over 80 years of age. He was this little old man, quick-witted and sharp, but would spend a lot of time sitting and napping. I only knew him in this way. However in his youth 60 years earlier, he was a decent football player and was one of the fastest runners in the state, as well as someone who was highly regarded in his professional life and across his many diverse talents that he considered hobbies, but performed them at professional levels. He was somewhat of a renaissance man, but sitting there in that armchair gently snoring - there was little sign to indicate all the experience that he had lived, or all the talent that he once held.

I wonder if as he dozed, he remembered those days in the 1920s, kicking a football for his team or running barefoot along the grass to take third place in a city sprint race that is still run today. I wonder if when he looked in the mirror at himself these memories seemed real or, they were like skills of mine, perhaps just a dream.

Maybe there is a softening as we age, where the mind starts to accept that these things we once held have slowly slipped away and disappeared. It could be that the brain changes to accommodate the inevitability of decline. If this is true, I haven't had that luxury of preparation and instead, it feels more like trauma, an act of psychological violence that has torn an invisible limb from my body and then cauterized the wound, leaving me alive and no longer whole, with diminished capabilities and no good explanation as to why I was targeted.

Of course, I wasn't "targeted" at all, there is no sense, no plan, no actual reason it happened to me, but that is of little comfort. I know life is never going to be fair, because life doesn't care about our concept of fairness at all. Some people have easy lives, some hard, some get lucky, some unlucky, some get a break, some get broken. Or perhaps, we all get some of these positions sprinkled on us throughout our lives.

Sometimes I feel like I am living a dream that I will awake from and everything will be normal again, I will be me as I was, but this is not the case. We can only live the life we have, experience what we do, do with it what we can - as the ripples keep radiating outward. What I do know is that there are many things I am no longer capable of today, but what I don't know is where what I do today, will take me tomorrow.

Scrolling through those photos I can see my wife and daughter, but I don't recognize me.

Taraz
[ Gen1: Hive ]

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Taraz, thank you for sharing this! I'm sorry you've had to go through this. It sounds like a hard time. I appreciate that you are taking the time to share your experience though, as i know some don't know how to put this kind of thing into words, nor can some do so after a stroke. So it helps those that can't to feel a little more human when they aren't alone, even if it is shared pain.
I want to add that I find your writing honest and easy to connect to, even though I haven't experienced what you have.

Thanks for dropping buy and leaving a comment .

as i know some don't know how to put this kind of thing into words, nor can some do so after a stroke.

One thing I am lucky with is, I can still write a bit at least - slower and without the flow, but not entirely gone. :)

Of course, I wasn't "targeted" at all, there is no sense, no plan, no actual reason it happened to me, but that is of little comfort. I know life is never going to be fair, because life doesn't care about our concept of fairness at all. Some people have easy lives, some hard, some get lucky, some unlucky, some get a break, some get broken.

Some would call this destiny, but I say that all is about possibility. However, I think that one should have a luck before starting to do anything. I don't know whether it can be sprinkled to us, but some people are really lucky in this life.

Some people definitely are lucky and it doesn't seem to balance in an individual lifetime. Perhaps this is why some believe in past-life karma.

Sorry man, hurts my heart to hear these struggles. It’s remarkable how unbelievably complex the brain is and we don’t fully understand it and probably won’t understand it for years, likely decades, to come. It seems part of the creative side was affected, where you take things on the fly. Hopefully with time you can adapt to that and compensate in other ways! Some stroke victims can redevelop in other ways, I’m hoping you can!

It seems part of the creative side was affected, where you take things on the fly

Yeah. It is part of the cerebellum that supposedly handles automated processes, but lots of things can be affected. It is about an inch-long piece in there that is dead. I wonder now that if I was given the chance to increase the size of a body part by an inch, where I would put it ;D

There is still chance that it improves a bit, but it is getting more unlikely. However, there is the compensation side of things to consider and that is always changing.

@tipu curate

Thank you :)

Thanks for sharing.
Stroke could be one of the reasons, as you said. But there are instances where I think I am being slow to reach where I would otherwise outwit others. There could be two things - physical aging and maturing. There are situations where I do not put a lot of effort just because I know I am not genuinely interested. In other instances, I do recognize my brain is taking time to process. It is so shuttle that I do not feel it is affecting my productivity but I can recognize that.

There could be two things - physical aging and maturing.

It is strange to notice, isn't it? Are you disinterested because you have matured, or is it your ego protecting yourself from aging? :D

The subtlety of it is the danger I think, as it means that we can shake it off for a long time, until we are suddenly nowhere near where we were. It is like going deaf over the space of a couple decades, only to find we can no longer hear what we need to.

Aging sucks - though I think, living forever would too. Would be great to get a healthy 100 years and then just drop dead in an instant :)

:)
It could be both. I have noticed lately that I am being defensive when it comes to conversations about age and experience. And, I am beginning to realize that there is age based bias if you are not at a certain level at a certain age. That's true specially in a hierarchical structure.
I experience that with sprinting and focusing while multitasking. I am no where near what I was 15 years ago physically and mentally.

Your Hive posts both pre and post stroke create an extraordinary, indelible first hand testimony of who you were and who you are now.

You are able to write so lucidly about your experience.
Keep it up mate!
You are in our thoughts and prayers.

Cheers mate. It really does help to write about it and perhaps it will help others if they have someone with similar issues in their life. My dad had dementia and having going through this, I think I would have thought differently about it if I could go back to those times he was alive.

Scrolling through those photos I can see my wife and daughter, but I don't recognize me.

That gutted me, mostly because I believe it to be true, yet few are able to verbalize it so well. The feelings of anger, frustration, and your intense analysis of the situation feel like you fighting to break free.

Not recognizing yourself? Your brain hasn't accepted who you are now. Perhaps this will inch you a little bit more. Perhaps not. You are a fighter! I must say that I admire you, in so many ways. You are living the best life you can, even as you push hard to make it even more.

Have a great day!

The feelings of anger, frustration, and your intense analysis of the situation feel like you fighting to break free.

It does feel like this! One of those "so close, but yet so far" scenarios.

This experience has taught me a lot about myself as well as others - there have been ups and downs on both sides.

Enjoy your weekend!

I might have told you my dad had Alzheimer's. The reaction from his own animals was definitely noticed. Animals can sense the change, long before humans. My dog growled at him, which was not common at all. She loved my dad, but, I believe she didn't recognize the new him. Strange, yes?

What I was struggling to say was that I could see how my father's friends avoided him, or let's just say, they didn't know how to handle this part of him, so they simply avoided being with him. People are odd ducks that way. I don't think it is purposely, I think it is an unconscious thing. Still in all, I was a little offended for him.

Sometimes it feels like they think it is contagious. Assure them it's not. ;)

She loved my dad, but, I believe she didn't recognize the new him. Strange, yes?

How strange is this... I wonder what my dog would have thought.

I don't think it is purposely, I think it is an unconscious thing. Still in all, I was a little offended for him.

I am not offended, but perhaps a little disappointed. One thing though I have to admit, I am not overly proactive in keeping contact - so it is definitely partly my fault too.

I have read it has to do with their heightened sense of smell and their ability to interpret human emotions. It was almost a year later that he was diagnosed, but apparently, we didn't notice the changes that she did.

I stand corrected. Disappointed is the correct feeling, not offended. Thanks.

Detailed feelings on how the delay in memory is affecting your inner self knowing it not to be who you ought to be.

No one will ever fully understand a void like this, thanks @tarazkp for expressing what you going through, it helps us who have never encountered this ordeal be more supportive.

As no surprise, writing about it helps. I can't imagine what it would be like if I didn't have an outlet to express it.

it helps us who have never encountered this ordeal be more supportive.

It has been interesting with friends as there are a few, who just drifted away, as they don't know how to deal with it at all. After all, I am not the person they knew, so perhaps the connection isn't the same.

At least, it is a change in experience that offers something new for me :)

Writing is therapeutic also helps to untangle some thoughts once you read them back.

We never know what life will dish up, some cannot accept and rather walk away, in reality this could happen to anyone of us at any given time, knowing more is always enlightening.

Never a pleasant experience with life altering change, one makes the best of/for themselves starting again.

So what 80 years of life, for your grand daddy, this is an amazing life, you and me, i am not sure if we could get this numbers of year old in our life.
But well we need to make a better decition with our time, and try to eat more healty and get out of the city and go to the forest or mountaing more fast, and spend a little more time in this kind of place.
do not worry the time pass but we here with life, maybe not in the best situation but we should try to live very well.
Best regard.

I think he had a pretty good life all up - seemed to enjoy his aging too.

Hopefully things are going well enough for you at the moment and in a year or two, things will be better again :)

We can only live the life we have, experience what we do, do with it what we can - as the ripples keep radiating outward.

In such case is to do or engage in what always makes us happy because there's nothing more excited than living happily.

Quit tragedy.
I pray you quick recovery.
Heartfelt for you 🙏🙏
I command a supernatural hands of healing upon your life this hour,
In Jesus Name.

bath with very clear water

Good post, thanks for sharing.

Thanks for sharing. I can relate somewhat. Our family was just watching some videos of when the kids were small. I use to take heaps of photos and videos of the family but as they have grown up and life gets busy, it seems like other things become a priority and we loose some of the motivation and interests that we once had. I think once the kids get older and more independent, maybe we will find that motivation once again.

Hey Taraz

Coming at you live from windy, sort of gloomy, England. Just read your post and wanted to send my condolences for your recent stroke experience, and also wanted to send my rejoice for your recovery.

Life is good, but not easy. I hope you will find the strength within you to walk on and live life to the fullest every day. Treat every day as your last.

I wanted to share a poem i wrote (and narrated i guess...) with thee in the hopes that it would lift your spirits up somewhat...if it needs lifting that is...

https://peakd.com/hive-161465/@jin-out/ghhenvaa-hive-161465

May you be as the Lotus, at peace in muddy waters.

Hi Taraz.

While you cannot envision things like you once did, your ability to describe them in great detail and paint a picture for others has only developed. Perhaps there is some comfort in this?

I understand the feelings of frustration (but I cannot begin to imagine the depth of it) you are experiencing with trying to logic why it took place and you did suffer trauma, you feel that you have lost parts of yourself which you are grieving.

Reading about your grandad was particularly sad and yet touching as I know you are now identifying with that experience you had of him completely differently than you did as a kid.

Don't lose hope, I know it may seem rich coming from me, but I witnessed someone older than you completely lose their fine motor skills, their speech, their ability to put on their own clothing, even their ability to identify what clothing was...make a recovery over time to the point where they regained almost all of their previous functions. I know that no two strokes are the same, but the brain does have amazing capabilities to reroute itself and turn on the lights in new rooms.

Keep fighting & keep writing.

wow respect for sharing
Thanks man.... 🧠

sigh that’s a thought provoking write up right there. Lifecycle is just crazy, no condition is permanent, nothing is promised, you only live once; forever young will all want to be , but it is an herculean task cheating nature .