Docs can prescribe Mestinon which works in a similar way. I know they can't prescribe a supplements. I would rather have a medication that is USP verified. But they won't prescribe it. Not sure why. Beta blockers are not good for asthma patients and propranolol made my albuterol inhaler useless.
I tracked my Hr /BP with and without the Hup supplemtn.Laying down, sitting and standing several times and shared the data with my doctor. Even though with BB after 1 minute of standing HR as 120+ and BP 150/98. On hup a HR just over 100 and 125/85 BP standing 1 minute. These are average numbers. She still won't prescribe Mestinon. I have asked several doctors about it no one will. Guess I need to wait a few years to get into the POTS center.
It's too bad you have to wait... Have you talked to the center in Utah to see if that is a viable option?
It's the travel that is the issue. My husband and I have looked into it and the wait list is only 1-4 weeks at the moment. I cant do planes, too much upright time. Considering a train, but that will take a really long time and I may not be able to lay down.
We are hoping the place in New York opens sooner rather than later. it's part of Mount Sinai (or at least involves some researchers there -Putrino Labs) New York is drive-able as I can lay down in the backseat. I have no idea when that facility will open and if there will be an immediate waiting list, but am hopeful.