A day in my life as a Systemic Lupus Erythematosus patient , Daily check up

in Hive PH16 hours ago

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Hello @hiveph community. I hope you are all doing well. Today I would like to share you all my LUPUS life journey. I am riding a motorbike going to the hospital to have a laboratory test for my illness.

As I was about to enter the hospital, I stood in line to get a number so I could pay for the laboratory tests that would be done on me. While my number had not been called, I kept thinking that I hoped the results of my laboratory tests would be ok. As I sat down, I worried about what the results would be.

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After 5 minutes, my name and number were called at the counter to get my blood drawn. My whole body was shaking with fear because of the needle prick because I was not used to it. But my mind always prayed to the Lord that everything would be okay. And I thanked the nurse and everyone who assisted at the hospital. Their nurse was very kind.

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and after that the nurse told me to relax for now while the results will be available after 3-4 hours, so I'll sit here while I wait for the results so that when I get them, I can go to my doctor right away. While I was waiting, I noticed that the hospital was very clean, the nurses and guards were also very kind because they respected unauthorized people entering the hospital and I was happy to see that . My tiredness while waiting for the results disappeared.

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Four hours later I got my results so I ride my motorbike again to another hospital to meet my doctor for lupus. And when I arrived there were many patients waiting so I took another number.

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While I was waiting again, I was tired from sitting for more than seven hours. But I realized that I had to be strong because I had someone with me who was in a wheelchair and he was able to wait for that long, so I decided that I shouldn't lose hope or give up because there were other people who were going through a harder time than me. So I raised my patience to wait for my number to be called.

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Each patient is spoken or explain to carefully by the doctor, which can take up to one or two hours, so really give yourself a patient to wait for them to call you.

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After seven hours, the doctor called me and it was my turn. While my doctor was talking, I was feeling very nervous because while she was reading the results of the laboratories, I looked at his eyes and face as if she was disappointed with my results, so I could hardly speak because of the nerves and nervousness. When she finished reading the results, she told me that the rest of my laboratory results were okay, but there were also other results that were not okay, so I still needed to take the medicine. She gave me a new medicine and after a month I would go to the laboratory again to follow up on my illness.

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Thank you for reading my story , I hope you are doing well until next time..

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I really admire your bravery in sharing your lupus journey. Waiting for results and facing uncertainty takes so much strength, and you handled it with patience and grace. I hope each follow-up brings you better health and peace of mind. Your story is truly inspiring and reminds us to stay hopeful no matter the challenges. 🤍

Thank you 🙏🏻

Thank you for sharing your journey. Your strength and patience even through long hours of waiting and uncertainty are truly admirable. Im praying for better results on your next check-up and hoping your new medication brings you relief.. Stay strong you are an inspiration to many.. 🤍🙏

Thank you sis, may the lord give me more strength and long life 🙏🏻

Wow looks amazing and wonderful @ekaaang

You are so strong for sharing your journey. I hope your next results bring you better news and more healing. Stay strong and take care always. ❤️